World Rare Disease Day

Name: World Rare Disease Day
Uploaded: 2019-02-26T13:00:00+00:00
Duration: 4 min 23 s
Description: An event is being held to recognize World Rare Disease Day which is a day designed to raise awareness of the impact of rare diseases on patients who live with them. Pam Crowley Andrews and Chris Andrews, who are parents of two girls who both have an extremely rare neurodegenerative disease, has more about the day and their organization Firefly Fund.

An event is being held to recognize World Rare Disease Day which is a day designed to raise awareness of the impact of rare diseases on patients who live with them. Pam Crowley Andrews and Chris Andrews, who are parents of two girls who both have an extremely rare neurodegenerative disease, has more about the day and their organization Firefly Fund.

Posted February 26, 2019 1:01pm CST